In This Section:
Below are a number of indispensible resources for families and caregivers that PLTC members have recommended over the years via the listserv and elsewhere. We hope you find them useful!
If you have any questions about these resources, or would like to suggest some that aren’t here, please email .
Castleman, M., Gallagher-Thompson, D., & Naythons, M. (2000). There's still a person in there: The complete guide to treating and coping with Alzheimer's. Penguin.
Barbera, Eleanor Feldman (2012), The Savvy Resident's Guide: Everything You Wanted to Know About Your Nursing Home Stay But Were Afraid to Ask. Psychology Insights Press.
Mace, N. L., & Rabins, P. V. (2011). The 36-hour day: A family guide to caring for people who have Alzheimer disease, related dementias, and memory loss. JHU Press.
Lebow, G., Kane, B., & Lebow, I. (1999). Coping with your difficult older parent: A guide for stressed-out children. Avon books.
Strauss, C. (2002). Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member or Friend. New Harbinger Publications.
Smith, P. B., Kenan, M. M., & Kunik, M. E. (2011). Alzheimer's for Dummies. John Wiley & Sons.
Shanks, L. K. (2005). Your name is Hughes Hannibal Shanks: A caregiver's guide to Alzheimer's. U of Nebraska Press.
Koenig-Coste, J. (2008). Learning to speak Alzheimer’s: A groundbreaking approach for everyone dealing with the disease. Houghton Mifflin Books.
Bell, V., & Troxel, D. (2012). A Dignified Life: The Best Friend’s Approach to Alzheimer's Care: A Guide for Care Partners. Health Communications, Inc.
Nelson, J. L., & Nelson, H. L. (2010). Alzheimer's: Hard Questions. Main Street Books
Salamon, M. J. & Rosenthal, G. (2003). Home or Nursing Home Making the Right Choices (2nd ed.) Springer.
If you’re dealing with a family member who is debating the pros and cons of whether or not to place a loved one in a nursing home – this is the book for them! It’s a practical book designed to inform, guide, and reassure families as to all the different aspects of this difficult decision.Order it on Amazon.
FitzRay, B. J. (2001). Alzheimer's Activities: Hundreds of Activities for Men and Women with Alzheimer's Disease and Related Disorders (Vol. 1). Rayve Productions.
Another very useful “cookbook style” resource book that compiles a comprehensive list of creative activities to engage dementia patients as well as their caregivers. This book is designed for clinical staff, family members, and activity directors.
Joltin, A., Camp, C. J., Noble, B. H., & Antenucci, V. M. (2012). A different visit: Activities for caregivers and their loved ones with memory impairments. Center for Applied Research in Dementia.
Continuing with the theme of “cookbook style” resources primarily designed for family members (but can also be useful for professionals!) this expertly designed resource book offers a variety of joyous and fun activities you can do when you visit your loved one who may have dementia.
Brener, A. (2017). Mourning & Mitzvah: A Guided Journal for Walking the Mourner's Path Through Grief to Healing: with Over 60 Guided Exercises (3rd Edition). Jewish Lights Publishing.
Rando, T. A. (1991). How to go on living when someone you love dies. Bantam.
Updated 2019-06-12 09:06:14